24 January 2009

No news is not good news

Ok, I actually got a call back from the neurologist's office. Unfortunately, it was only to tell me they still did not have the results. His usual nurse was not in and the person covering for her did not seem to know what to do. She said that the nurse would have to look into it on Monday!! So, once again, I'm just hanging around with no information.

Headache pain is staying fairly steady now. Too bad it's at a level that's just this side of intolerable. It also hurts over a larger area more frequently, rather than being kind of a localized pain.

That's all that's happening. Nothing.

23 January 2009

Still waiting

I guess the neurologist didn't get test results back yet...I'm still waiting to hear from him. If I don't hear by noon, I'll be calling back. After all, the lab tech said the results would probably be to the doctor by Wednesday!

Headache was bad all day yesterday and it seems to have picked up right where it left off. I have the tv on so I can watch news, but it'll probably be turned back off soon. I didn't turn it on at all yesterday and even used earplugs to try and reduce the noise. Hopefully I can leave the earplugs out today, but something tells me that isn't going to happen.

More later, if I hear anything.

22 January 2009


I actually got a call back from the neurologist! However, it was just to tell me the lab results have not been received yet. Once they're in, the nurse promised to call me.

Today's Thursday, right?

Ok. I didn't hear from the neurologist yesterday about blood test results. Therefore, I've already called and left a message for them to call me. (They have a totally automated phone system...only get a live person if it's an emergency). Here's hoping they call me back SOON.

The headache was really intense and more widespread yesterday afternoon and evening. I ended up using earplugs to block noise, which seemed to help keep the headache from worsening. Of course, it made conversation difficult! The pain's not as bad right now, but I've noticed the pain seems to increase steadily throughout the day now. 30mg of that med doesn't seem to make any difference whatsoever.

I'll let y'all know when I hear about the results.

21 January 2009

Yes, I'm still here

I mean, where else would I be? It's hard to go anywhere when Diablo's on my lap holding me down! Headache's the same old thing. Nothing exciting going on. Hopefully, I'll hear from the neurologist today or tomorrow with the blood test results. No word yet.

Last night I had the jitters and my heart was racing like I had drank one of those energy drinks. I have no idea why and it's not going on right now. Maybe that one (1!) Mountain Dew I drank over the course of 12 hours set me off??? I drank nothing but water otherwise.

MLS preseason training started yesterday. Yay! That means the season is just around the corner. Of course, if this headache thing isn't resolved, I don't know how many games I'll go to since the noise level is quite high. Here's hoping that we figure something out. Soon.

Nothing else going on here.

20 January 2009

Inauguration Day!

Sorry I didn't post anything earlier, but I was watching the inauguration. It's one of those days that makes me even prouder to be an American...being reminded of the peaceful transfer of power. All I can say is, "God be with you, President Obama!"

I went to the lab yesterday and had the blood drawn per the neurologist's orders. The lab claims the doctor will have the result sometime on Wednesday. Meanwhile, I've upped the Nortryptiline to 30mg/day as of last night. We'll see if THAT makes any difference. I'm not holding my breath, though. Not since I woke up with a strong, localized headache pain today, even after plenty of sleep.

I am just so tired of this headache and the inability to concentrate as I did before. I'm getting completely frustrated and irritated/irritable!

Ok, President Obama has signed his Cabinet nominations, so I'm going to go find some food now.

19 January 2009

It's so nice to be home!

No matter where you go or what you do, it's always so good to get back home. I've discovered that the more or less "controlled" environment at home is what's keeping me sane. After being out amongst people in public and then at someone else's home, I discovered that the headache hurt much more all the time. I'm assuming it's mainly due to elevated noise levels, but I also think just more physical activity made the headache worse. Walking around the exhibits at the NSCAA convention caused my headache to steadily get worse. It wasn't exceptionally loud in there, so I think some of the pain increase was simply due to not being still.

Ok, doctor update....in the mail when we got home, there was an envelope from the neurologist's office. Inside was a prescription form indicating some blood tests to be done. No letter, note or anything else. I guess I just need to go get the blood drawn at one of the labs around here. For those who are interested, the tests ordered are: Anticardiolipin antibody ANCA, RPR and ESR. I think they're the same tests I had done last month. They're all tests to either rule out specific autoimmune diseases or to confirm them. I'll get that taken care of later today. Meanwhile, the 20mg dose of the new med had no effect this past week. Tonight the dosage goes up to 30mg. Yay.

I have another story to tell about this past weekend, but it's going to have to wait. Headache is getting worse already.

18 January 2009


Just a quick note to let everyone know we made it home safely. I'll write an update later today or tomorrow with more info.