31 January 2009

Weekend already?

Wow, time flies when you're having fun..........yeah, right.

I don't feel well this morning. It started last night and it's only marginally better now. I'm hungry, but it feels like if I actually eat anything it won't stay down. The headache is still at a pretty high pain level, so I'm sure I'm not very good company. I took a nap late yesterday afternoon, getting up about 7:00 p.m. and was back in bed shortly after 10:00. I slept almost another 9 hours and only got up because I really needed something to drink. I feel almost dehydrated so I'm imbibing in a lot of water.

Nothing else much is going on. Just sitting around. Have a good day, everyone!

30 January 2009

Another Friday

Well, nothing has changed since yesterday. Now I just get to wait until Feb. 9th to see neurologist #2.

Still have the headache. Still want it gone. Still no relief from meds.

Oh, well.

Have a wonderful weekend!

29 January 2009

Oh, boy!

Well, I did some research and found another neurologist with privileges at my favorite hospital, nearby office and no black marks on his record (per State Board of Healing Arts). I called and explained to the receptionist that I was switching neurologists and wanted to get in as soon as possible. When I explained why I was switching, she said "Oooo. Ok." and found an appointment for me on 09 Feb. It's another week, but at least I have a set time. Now I just have to get all the test results and stuff that does exist over to the new doctor before my appointment. I've left a message for my primary doctor as I'm sure he'll do what he can to get info to the new neurologist.

You know, my doctor had asked my opinion of the first neurologist yesterday when I was talking with him. I told him, "He's nice enough, but he really doesn't seem all that concerned about the pain I'm in." My doctor said that perhaps the neurologist doesn't have good people skills. Well, that may be true, but why does the nurse sound all pissy when I call? I get the feeling that patients really keep her from doing something. What? I don't know.

Here's hoping the new neurologist is able to do more for me. It sucks to be off work, but unable to do much because of the pain. When I went to the doctor's office yesterday, it was only the 2nd time I've driven in 6 weeks or so. Both the trips involved no highways or major traffic, but my head was excruciatingly painful by the time I got home. No way I could drive in traffic or on a highway! So, I'll get myself to nearby locations (new neurologist is just across the highway, by the hospital), but leave the driving to others for longer routes.

Happy Thursday!


Ok, so here's what's happened:

Yesterday afternoon, I went by my primary care doctor's office to drop off new disability leave paperwork to be completed. The doctor took me back to one of the rooms to review what was going on. I updated him on the latest wait - for blood test results - and he asked where I had the blood drawn. It was at a lab that's also the lab company they have on site. So, he went and asked the lab tech if she could check on results from my tests. She did what was necessary, discovered the results were complete (as of yesterday), and they actually faxed the results to my primary doctor within minutes. She said they were also faxing the results to the neurologist's office. The doctor looked over the results, said nothing jumped out at him, but that the sed rate was still elevated. ????

I told him that the neurologist's nurse had told me before that the sed rate was complete and it was normal. My doctor said, "No. It's elevated." ????

He explained that the elevated sed rate indicates only that there is some type of inflammation in my system, but does not diagnose anything else. Other tests have to be done to determine the specifics. When I told him that I had received the denial notice for the CT-A based on the fact that the head MRI was "normal" he was amazed. He went back to the MRI report where it very specifically stated that the result was "abnormal" with unknown white areas in the brain tissue and a cyst in the left sinus. I'll be contacting the insurance company today. But why had the neurologist's office submitted paperwork for approval indicating the MRI was normal?????

So, yesterday afternoon I gave the neurologist a chance to look over the blood test results. He never called This morning, I called and when the nurse called me back, she said that the results were not received yet!!! Weird, as I was looking at a copy of the results at the time. I don't know what's going on with the neurologist, but I'm going to find another one. I have lost all faith in this one. At least I can show up with my CT & MRI results, along with 2 rounds of blood tests, for the new doctor!

So, now I have a headache (figurative) to go with the headache (literal) I already have. When I have more information, I'll update everyone.

28 January 2009

Here we go again

So far, no change in how I feel and no further word from the doctors. I'll be calling again today. You'd think they'd just call me every day so I wouldn't call all the time!

So far, I'm evading most of the cold symptoms - lots of fluids are keeping the phlegm moving. I just feel rather washed out and sluggish. Here's hoping that's the worst it gets.

Nothing going on here at all. Being off work isn't much fun when you really can't do anything.

Have a good day, everyone!

27 January 2009


Same stuff, different day. And now I think I'm coming down with a cold or something. No more calls from doctors yet.

26 January 2009

Fed up!


Sorry, had to vent.


Monday, already??

I'm never going to figure out how to sleep with this headache. I either can't sleep at all or I sleep for hours and hours and can't really get ambitious enough to get out of bed. Today it was almost 11:00 a.m. before I woke up, and then only because the neurologist's nurse called! She explained that they're still waiting on most of the results simply because the tests take a lot of time to complete. The only results they got back were for the SED rate, which was normal. (The SED rate test can reveal inflammatory activity in your body, based on how quickly red blood cells settle in a test tube). It's not a stand-alone test, but just a piece of the puzzle. So, at least the results have started coming in.

Meanwhile, the headache is still hanging around. It's now covering a larger area rather than a small localized area, but I seem to be more sensitive to too much activity/noise. I mute the tv most of the time when I'm alone. I also have earplugs I use frequently. Right now, the pain is above my eyes, across the entire forehead and back to my ears.

Nothing else going on here. Have a wonderful week!

25 January 2009

Early morning

Hey! Is anyone awake out there?? I've been mostly awake since about 1:30 a.m. but got out of bed about 6:15....I went to bed about 10:30 p.m. so that doesn't make for much sleep. The pain just kept escalating throughout the day and evening yesterday, and my head just hurt too much to sleep. I'd doze off but then I'd be awke shortly there after. I have a feeling I'll be falling asleep during the day today. Again. Bobby's fighting off a cold and yesterday we both ended up taking naps in our chairs! At least we were wide awake by the time the US-Sweden game started.

We did leave the house yesterday afternoon, though. We went to eat at Longhorn. We both had the parmesan-crusted steak they've been advertising and it was fantastic! The steaks were covered in a parmesan/garlic mixture....lots of garlic! Garlic lovers that we are, it worked out just great. We went and ate in the middle of the afternoon so it wouldn't be crowded and noisy.

At least the 24 Hours of Daytona are on...at least there's something I can put on the tv that doesn't require sound!

That's it for me.