31 December 2008
"Keep the smile, leave the tear. Think of joy, forget the fear. Hold the laughter, leave the pain. Be joyous, because it's new year's day!!"
He's somewhere on the other side of the world, I think. I just thought it was a great way to welcome in the new year.
Guess what......I actually left the house yesterday. Of course, it was to go take care of switching car insurance companies and to look for shoes for Bobby and go to the grocery store, but I'll take what I can get. Not that any of the chores were exciting, but I got pretzels at the mall, so I'm content. (And Bobby discovered that the shoes he liked were too wide through the heel, so that was all we got at the mall).
So far, the headache's a little better today. The center of the pain has moved, though. It's moved from the left front to kind of the right center, though there's still a "hot spot" pain in the left front. Unfortunately, it feels as if it's going to develop into a rather large area of pain by the end of the day.
Everyone - have a wonderful, fun, safe and sane New Year's Eve. E ya next year!
30 December 2008
Bobby came home last night. :-) He was unable to get a ticket to the show he was planning to go to last night, so he just came on home. I'm sad he couldn't see his friend's show, but happy he's home. So balance has been restored. The cats are no longer confused. At least no more than usual. Bobby's taking the rest of the week off work, so we get to hang out together. Maybe I'll really get lucky and get in to see the neurologist! I'm not holding my breath on that one, though.
Ok, that's my limit for now. Perhaps I'll write more later.
29 December 2008
28 December 2008
Well, I knew it was coming, but it's still sad. Josh & Jenn left for home this morning. It's always so great having them around, even when we're not really doing anything. It's like part of me is missing when he's not around. Oh, well. They're doing well and Josh even got word that he was hired for a second job for which he had applied. The hours at his other job have been reduced.
On their way home, they're going by to pick up Melia. Melia's visiting them through New Year's. I'm sure all of them will have a blast!
We had a great visit. It's so nice that they live closer, as I get to see them more frequently. I'm sure his dad and mom (ok, step-mom, but that sounds like they don't get along. She's his mom, too) miss seeing him so often, though.
The headache has moved to a different part of my head this morning, but it's still a fairly strong pain. I am just so tired of this. However, perhaps a couple days of relative silence will help me deal with it.
Nothing else is going on. Love to all!
27 December 2008
It's Saturday morning and I'm finally awake after going to bed at 2:00, not falling asleep for quite a while, then being awakened by a thunderstorm (?!???!!!!) soon thereafter. At least you can say this about the weather, it definitely keeps the local meteorologists on their toes! We were even under a tornado warning and/or flash flood warning. Odd for December, but that's what we're used to dealing with.
The headache stayed pretty bad all day yesterday. When I first got up this morning, I thought it was at a little more manageable level, but by the time I had taken a shower & gotten dressed, it was at least as painful as it was yesterday. The location of the main area of pain shifted a bit, but the intensity hasn't changed.
I have no idea what we'll be doing today. J&J are going over to the Light side (of the family) this evening, so we'll probably just hang out at home again today. They went out looking for turntable parts yesterday afternoon. Other than that, we've been sitting around watching movies and even complete series on tv. Good thing we all like the same type of shows, eh?
No other activity here. Blog ya later!
26 December 2008
At any rate, we enjoyed good conversation, great food and wonderful gifts.
The headache bothered me quite a bit in the morning. I ended up having to leave the sanctuary during church as the sound/stimulus pushed the pain up to an intolerable level. However, after finding a quiet area the pain subsided. The rest of the day, when pain would start to ramp up, I would close my eyes for a while (I've discovered that if I remove some of visual stimulus, I can somewhat slow down the pain escalation). I managed to get through the rest of the day without a major pain episode.
I finally slept well last night. I hadn't slept soundly for a couple nights. However, I woke up with a much worse headache than I had when I went to sleep.
I'm off to find some breakfast. Love to all!
24 December 2008
23 December 2008
I got an early Christmas present yesterday - some wonderful English Muffins from Mell & Joe! They are outstanding and I think Wolferman's has gained a new customer. Thank you, thank you, thank you!
The headache is about the same today as it was last night, which was pretty bad. I can handle short conversations, but after a bit even talking is painful. I much prefer the written word today. I can read/write a bit at a time, and it doesn't matter if I stop for a little while. The mute button on the tv remote gets a workout, because noise can make the headache worse. It's amazing how much better daytime tv is when you don't listen to what they're saying! I'm definitely learning patience during this.
Matt's still working on one of my projects at work. He called me yesterday trying to get some help in determining how to set up some file/folder structures with the hyperlinked index. In my great mentor role, I told him I hadn't a clue and to just do what worked best for him. Awesome advice, right? Hey, I do the best I can with what I have to work with. Fortunately, he's a bright guy and will figure out a good solution.
Time to shut up and take a break. Love you, everyone!
22 December 2008
21 December 2008
I have a feeling it's going to be another day where I just try to get through it without crying from the pain.
20 December 2008
However, the headache's been bad since yesterday. Today it feels like someone's hand is on the top of my head, pressing down hard - the pain is across the front of my head and back towards my ears, then meets in the middle of my head. It's going to be another day where it just plain hurts to concentrate. But, hey, it's Saturday so I shouldn't have to think, right?
Here's hoping I'm up to posting more later.
19 December 2008
Ok, I'm starving. Time for some Cap'n Crunch. More later.
18 December 2008
I live with the greatest guy in the world! He read what I wrote about the cats' food and he went by the store and picked up "real" food for them on his way home from work Thursday. The cats are much happier and less whiny after getting this food...and he even remembered to get the indoor formula for our spoiled rotten kitties. Bobby, you're great!
17 December 2008
Well, one thing about these headaches...I can just stay home and look at the snow. It's much prettier when you don't actually have to go outside. Of course, I'd much prefer to go outside to a neurologist appointment, but no such luck today.
Cats still appear to be on a hunger strike. Very weird. That food must taste pretty awful for them to decide not to eat at all. Oh, well. Their choice. Oh, but Pande now plays fetch with a Mountain Dew screw-off lid....with Bobby. It's just hilarious. She has left the lid on Bobby's chair, eagerly awaiting his return from work.
The headache is so-so today. However, I have a feeling it's just beginning to ramp up. I just took my first drugs of the day to try to head it off at the pass. Neck pain is minimal so far. No news yet from any medical practitioner.
Off to play on Facebook now!
16 December 2008
Sorry I haven’t given any updates, but there really hasn’t been anything helpful until today. I’ve still been having headaches and dizziness and, as of this morning, nausea. So, here’s the update since the ENT visit last week (was it really just a few days ago?).
Thursday late afternoon/evening
Went to ER as headache pain was beyond bearing. My doctor was hoping they’d admit me and do some more tests in the hospital. The ER doc did not agree with that plan. She did some basic neurological tests, which I apparently passed. Again, all the standard vital signs were in the normal range (of course they were – after all, I take those pills daily for a reason!). She did decide to do a spinal tap to rule out meningitis and stuff. Good thing needles don’t bother me. Anyway, the spinal tap was just fine. Darn it. ER doc sent me home.
Spent all day waiting for my doctor to return my call to follow up on the ER visit. I spoke with the receptionist at 9:00 a.m. and she said she’d give him the message as soon as he finished with his patient.
Oh, boy. Just when I thought I knew what was going on, it got worse. The headache that had been fairly localized (if in varying locations) all of a sudden changed. The pain started just above my eyes (basically the width of my eyes), went across the top of my head, down the back of my head and into my neck. I suddenly couldn’t move my neck (!) without pain. Joy. At Bobby’s
suggestion, I tried a heating pad, and that seemed to help. So I spent most of Saturday in the recliner with the heating pad at my neck. Except for a trip to Aldi with Bobby, since we really didn’t have food left in the house. ;-) That wore me out and I was happy to get back to my recliner and heating pad.
Repeat of Saturday, minus the Aldi trip. Decided to try and go to work on Monday, with Bobby’s help.
Got up, took a shower, put on work clothes (it’s been over a week!) and Bobby took me to work at 6:00 a.m. as I didn’t want to drive in case of dizzy spells/neck pain. No neck pain or dizziness initially. Yay! However, by 7:00 a.m. the pain was building in my head and had returned in my neck. And, for the first time, I had nausea. It just doesn’t get any better than this, does it? I went and talked to Linda (my boss, who had just got in to work) and explained that, no matter how badly I wanted to stay, there was no way I could work due to the pain and lack of concentration (no multi-tasking for me, that’s for sure). Gary (co-worker) drove me home about 8:00 a.m. So much for being able to work.
I left a voicemail message at my doctor’s office which was returned by the nurse fairly quickly. She had never heard anything about my ER visit on Thursday. If the girl who took the message actually passed it on, the nurse had never heard about it (which would be unusual..these nurses know everything). I explained what was going on and got an appointment for 10:30. I then texted Bobby and asked if he could leave work and take me to the apppointment, which he did.
Went to the doctor, who, while filling out paperwork for my FMLA leave (I’m officially off work until at least 31 December…I have no idea how much will be paid), put his nurses to work trying to get me a same-day MRI and/or neurologist appointment. By finagling the system, Kami got me a 12:30 appointment for the head MRI. The doctor also said he’d give me prescriptions for Percocet (to see if it helps the headaches) and Phenergan (for the nausea). Kami rushed us out
to go to the hospital to get the MRI. Said she’d follow up on the prescriptions.
Got to the MRI place and discovered Kami had forgotten to give me back my insurance card which she had borrowed while trying to make appointments! Fortunately (?) my info was in the system due to my very recent ER visit. Kami called while I was checking in and said she had faxed a copy of my card to the hospital, so everything worked out just fine. Had the MRI done and went home.
I had left a message for Kami, letting her know the MRI was complete so they could start trying to get the results. I also said I’d be by later to pick up my insurance card and the prescriptions. I called back an hour later and Kami said they still hadn’t heard from the radiologist. I decided to go get the card & prescriptions, anyway.
So, we go back to the doctor’s office and I went inside to grab the stuff. Bobby waited in the car. Kami spotted me in the waiting area and told me to hang on, the doctor wanted to talk with me. So, I spent more time in the waiting area (Bobby still outside – I thought it would only be a few minutes). Finally, between patients, Dr. Bernhardt called me in and said he had the results! I was so relieved! He went on to say that the MRI did not show any tumor/mass but that there were several 5-6 millimeter “spots” across both sides of my brain.
He explained that there were several possible causes, ranging from vasculitis (inflamed blood vessels) to an entire spectrum of autoimmune diseases (MS, lupus, rheumatoid arthritis, etc.). He had spoken with a neurologist who said he’d see me, but has no open appointments. They’ll be calling at the first cancellation (pray that it’s quickly). Meanwhile, the neurologist told Dr. Bernhardt to order a slew of blood tests (in addition to the ones we’d done over the past few weeks). I had the blood drawn and left. Bobby was still waiting in the car. :-)
We went and dropped off my prescriptions at a very busy Osco. We’ll pick them up in a little while.
I looked up info on vasculitis on the web and learned there are bunches of different types of vasculitis, all varying in severity/treatment/prognosis. I’m just so thrilled to have a direction to go with the testing and stuff that the diagnosis itself is not bothering me (yet). At least now I know possibilities and I know my job is safe (or at least as safe as any right now) thanks to FMLA. I may have no money in the near-term, but Bobby and I will figure it out. [BTW – Christmas won’t have many packages from Lori, except for a few things I had already ordered.]
Please pray that I get to the neurologist quickly. After that, we’ll have a better idea of what we’re up against. Mom will go to the neurologist with me…she can answer medical questions about autoimmune diseases in our family, which may help the doctor. Also, say a prayer of thanks that there was no tumor/mass - - - that’s what we had been dreading.
For those who may not have known, I've been having headaches for a month+...all the time for the last several weeks. For the last couple of weeks, I've also been having some dizziness problems off and on. My regular doctor couldn't discover the problem and a CT scan of my head showed no abnormalities.
So, today I saw an ENT. He said he's not a "headache guy" but he did tell me it appears I have "Benign paroxysmal positional vertigo" which apparently means my inner ear isn't regulating stuff properly so I get dizzy. He's going to try physical therapy to fix it (I envision little treadmills for my ears!), but he did say it usually corrects itself eventually. So, at least there appears to be a name for the dizziness. He thinks it may go back to a virus I contracted some time in the past and ventured a guess that the headache may be related to the same virus. He's also going to check with my doctor about some elevated bilirubin levels that have showed up in my past couple of blood tests (since June). They're just a little over the max number, but he's wondering if there's something possibly going on with my liver/gallbladder, also.
So, I still have headaches and dizzy spells, but I'm working on getting to the bottom of it. The problem is, I'm so dizzy that I am afraid to drive, and when the headache's bad, I can't concentrate at all, so work is almost impossible. Of course, I have no more paid leave for this calendar year, so I've missed a lot of work and it's all uncompensated. I am going to complete paperwork so I'm covered under FMLA so, hopefully, my job won't be at risk while I figure this out.
Other than that, things are going ok. Except that Bobby may starve to death - I have problems cooking due to the headache/dizziness and he's just going to waste away to nothing!
I'll be posting a summary of what's been going on for me health-wise. Most of you already got all that info via email. I just want to put it on here so I know that people are aware of what's going on.
I'll probably also post stuff about the Kansas City Wizards, MLS and general soccer stuff. That only makes sense since I'm a soccer fan!
I also play around on Facebook. You may find me there playing some kind of game or just hanging out reading stuff. Yet another activity that does not force the user to use too many brain cells. :-)
That's all for now. I'm still figuring out how to do all this bloggy stuff, so expect things to change around frequently while I test different things.
Oh, yeah. If ads show up, it's because I figured if I'm going to do this, I may as well try to earn a few pennies a month. Why not? Please feel free to follow any or all links to things that interest you (I don't have much control over which ads appear).